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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

Thanks to the XLH community, we have exceeded our fundraising goal for our 25th Anniversary! We are so grateful to all of our donors. 


If you missed this campaign and would still like to donate, please click on the picture below.


What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...






Voice of the Patient Report.


Report and transcripts from
The Symposium on Hypophosphatemia






Upcoming Events

Follow the XLH Network Inc. Facebook Page for details on how to access these events.





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